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25 mei 2007 -

Er moet een scherper onderscheid gemaakt worden tussen hype en hard in het genomicsonderzoek. Een serieus publiek debat vraagt om een realistische beoordeling van de beloften die rond genomics worden gedaan. Daar moet een ‘countervailing power’ aan te pas te komen.

Gezien de deskundigheid die nodig is, moet de tegenkracht uit de wetenschap zelf komen, van onderzoekers die kritisch zijn over de beloften en hun reputatie in het geding durven brengen. Een praktijk waarin ongefundeerde beloften publiekelijk lik op stuk krijgen, zal de kwaliteit van het genomicsonderzoek
ten goede komen.

Deze ongewoon scherpe conclusie valt te lezen in het rapport 'De maatschappelijke agenda van genomics', dat het Centrum voor Society en Genomics deze week presenteerde. Het Netherlands Genomics Initiative (NGI) heeft de lessen uit de eerste vijf jaar ter harte genomen. De torenhoge beloften die indertijd zijn gedaan om de 300 miljoen euro voor dit programma binnen te halen, konden in de eerste termijn onmogelijk worden ingelost. Maar de roep om concrete resultaten en om valorisatie is luid en duidelijk in Den Haag.

Het NGI heeft deze boodschap ter harte genomen. Een dertienkoppig lekenpanel, geleid door Felix Rottenberg, heeft vijf maal uitgebreid gediscussieerd over alle maatschappelijke aspecten in de verschillende genomics deelgebieden: medisch, landbouw, industrieel, voeding en gezondheid. De commissie was breed samengesteld met onder anderen een vertegenwoordiger van de Consumentenbond, een schrijver, een filmmaker en een lid van de Raad van State. De centrale vraag was welke bijdragen de samenleving mag verwachten van genomics bij het oplossen van problemen. En: welke maatschappelijke rechtvaardiging bestaat er voor de voorgenomen ontwikkelingen en voor de door onderzoekers en bedrijfsleven gevraagd publieke steun? Het resultaat is een lijst met tiental punten die de komende jaren moeten dienen als maatschappelijke agenda.

Een van de conclusies is dat de belangenverstrengeling tussen industrie en wetenschap een risico is voor de onafhankelijkheid van de wetenschap en de claims die uit naam van de wetenschap worden gedaan. Dit geldt ook voor de banden van de industrie met maatschappelijke organisaties, zoals patiëntenverenigingen.
Het NGI zal de agenda serieus nemen, zo bleek bij de presentatie, al was het maar om de komende vijf jaar voldoende maatschappelijk draagvlak voor het onderzoek te krijgen.

Het is interessant dat deze agenda verschijnt juist op het moment dat minister Plasterk, tot voor kort zelf een NGI-onderzoeker, weer terug wil naar onderzoekers die zelf hun agenda bepalen, gebaseerd op hoge wetenschappelijke ambities, in plaats dat ze zich laten leiden door de gedachte aan valorisatie en het bijdragen aan het oplossen van maatschappelijke problemen. Het neemt niet weg dat als het NGI doorgaat (en daar ziet het naar uit, zie ON189) de maatschappij over vijf jaar onverbiddelijk zal vragen naar concrete resultaten.

Bron: Onderzoek Nederland, nr. 190, p. 3

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wty123
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9 aug 2017,7:39

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a10
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15 jul 2017,11:00

taxi to Manchester airport

Are the machines for manufacturing only?
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Otis Van
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25 jun 2017,22:25
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